By now, everyone knows that fun app that you can use on Facebook that takes all of your most commonly used words and makes a cool infographic. If I was to make an infographic about the most commonly used phrases that said to me are “feel better” and “how are you feeling?” would be HUGE.
Don’t misunderstand me, I appreciate those who take time out of their day to wish me well or check in on me. What makes it hard, is the realization that my health is one of the first things that people think of when they want to talk to me. Since 1997, I have worked with individuals with Developmental Disabilities. I often wondered if this is how they felt, always being addressed as a “person with Autism or ” a person with Down’s Syndrome. The person is never just the disability, and I have been a staunch advocate for that…
Having said that, I never truly knew what it felt like to be an “individual with a disability” until I was a person with a disability. Like any other disability, it shouldn’t define who you are, but in all reality and in society it does.
You may be asking yourself, “okay I get this but what is the point?.”
Ahem, right. 🙂 Getting to the point: staying focused and keeping my thoughts organized is one of the challenges I am working on at the moment. My point is I have to remind myself I am more than just the conglomeration of medical/psychological diagnoses attached to my file. I also have to remind myself that when I hear,”How are you feeling” or “Get better” it is coming from a place of compassion. Even though to me its a reminder that I struggle everyday to get out of bed and go to work. Maybe it should be a reminder of YES! I get out of bed everyday and I go to work!
But my thoughts can’t help but directly to: What happens when I can’t? And that my friends, is the scariest thought to me…
I found this on Facebook the other day and it really resonated with me…I hope it resonates with someone out there too 🙂